RIP to a special mother, misjudged by inept professional services.
Back in the very earliest days of Parents Protecting Children UK, I was contacted by a former nurse. Like me she was an older parent and had a boy and a girl - hers were slightly older than mine, her youngest was close in age to my eldest. In both families there were autistic conditions, diagnosed later. In both families a key issue was the Local Authority being unhappy that she & I had won support for our children from SENDIST tribunals. They accused this mum of inventing or causing or exacerbating her daughter's difficulties.
They took her daughter into care and tried to pretend that educational Improvements were because she was away from home (rather than because she was now in the Special School which her mum had identified and won for her). Her daughter was selectively mute and never spoke to her foster carers - she had a secret mobile which she used to communicate with her mum.
When the girl was 16, the LA gave up and let her go home. The new SW told the girl that she was "lucky to have a mum that was willing to have her back" as most people leaving care "had nowhere to go". This new SW simply didn't understand that there hadn't been a single day on which mother and daughter hadn't longed to be reunited.
Once the daughter was home, her life moved forward very quickly, speaking more widely, going to a local FE college, gaining employment and a long term boyfriend and eventually a Council flat of her own. Mum was always on hand for advice and support.
Tragically however, during the years of fighting with the LA, this mum's own needs were dismissed as attention seeking - so she ended up wheelchair dependant. Her health hasn't been good, at least in part because of diagnostic and treatment delays, through interference by intrusive professionals who thought they knew best!
Late last year, on what should have been a happy occasion, mum fell and was for many weeks in hospital far from home, where the accident happened. She was eventually transferred to a hospital near home, but acquired pressure sores through long hospitalisation. I heard today that she died earlier this month, of septicaemia from an infected pressure sore.
I'll miss her occasional cheery texts - remembering Christmas, Rosh Hashanah etc, sharing holidays and special events - alerting me to TV or radio programmes about false accusations and Child Protection gone wrong.
Most of all I remember how, although I never met her, I felt she was there for me as much as I'd tried to be there for her. I especially remember the night several years ago when my own mum was having a cancerous kidney removed. I was in the hospital car park almost too terrified to go inside, in case the news was bad. This mum texted and then, not liking my reply, put on her best nurses manner, rang me and sent me inside ready to face whatever there was to face, (which at that time was fortunately good).
She will leave a very big hole in the lives of her husband and children. I can't help but think that if idiot Social Workers had kept out of areas (which they simply didn't understand) involving disability and neurological difference, then this family could have had a longer and better time together.
Jan Loxley Blount 28/93/17
Tuesday, 28 March 2017
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Jan, so sorry to hear this. To die from an infected pressure sore is medical negligence in the extreme. When the family have recovered enough, I hope they find the will to take this forward as a case of negligence. The professionals involved, in the whole story, have a lot to answer for. Tragic.
ReplyDeleteThis isn't the first and won't be the last premature death as a result of social worker and other professionals misunderstanding and misrepresenting illness, disability and neurological difference.
ReplyDeleteYet another horrifying instance and it makes more determined to help others fight this genocidal system. That women's suffering will not be in vain.
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